Faces: Real People, Real Stories

The following contributions are from real residents, families and friends.  In most cases, the Consumer Voice has removed any identifying information to protect consumers' identities.

Featured Stories:


Advocating for Quality Care at Home

Hello, my name is M.

I am totally blind 62 years of age, single woman, receiving home health care services from an agency located in Washington. I have found that the quality of service leaves a lot to be desired, the providers get to the point where they do what ever they want. Complete work early then just set for two or three hours doing nothing but getting the pay from the state. It is an ongoing issue with them going to the store for me and buying what they want with my money, bringing games to work while on my state given time, making telephone calls arranging medical appointments for husbands or just engaging in friendly talk while on my state given hours. One changed where my high blood pressure meds filled without asking nor telling me that they had taken the meds somewhere else another drug store. The provider T. comes in and questions as I am a kid her tone is so offensive, I need respect from this person, I explain to all persons who come to take me to the doctor after having a stroke, I do not want to ride the freeway every time I go to doctors, office even after asking her to get off the freeway she refused. I had a video put in my home which I told my care provider T. she got upset and told me she was going to inform her supervisor at [name of agency] and she did after she talked with M., and being badly informed on the laws and people having videos in their homes, M. called me and I let her know that it is not against the law for me to have a video in my home. Read more >>

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My Mother's Story

Dear Sirs,

I am contacting your office to ultimately clear up a problem that has been a mystery in itself and had cost my mother and myself a lot of lost time together.

My mother is now deceased and had been a resident of name of nursing home in Nebraska, since the early 1990’s-1992. I believe she was placed there if memory serves. My mother did not acclimate easily to this institution's living arrangement. Read more >>

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A Letter to the Admissions Director About my Father

October 2010

Admissions Director
Long-Term Care Facility
Georgia

RE: H., Room XX, October 2010

Dear Admissions Director:

I am writing to state in no uncertain terms how utterly appalled I was/AM with the lack of care (UN)provided to my Father, Mr. H., during his short stay at your "healthcare" facility on Tuesday afternoon/evening.

Dad had been at "your long-term care facility" for approximately  five hours and still had nothing to drink, no tray table, no breathing treatment, no pain medication, no urinal, no nothing. He had not even been so much as offered a cup of water (even though I continuously requested these items from your staff for his comfort and care).

The oxygen machine that was initially provided shortly after arrival to Room XX kept alarming and not operating correctly. I had to attempt to locate a staff member each time to correct the situation (this generally took approximately 5 minutes per alarm). Shortly thereafter, this same faulty piece of equipment stopped producing oxygen altogether with no alarm going off. It was more than apparent to me that if "I" had not been present to continuously seek out staff and report, and eventually insist your staff replace it, I gather Dad would have been without oxygen for hours, too.  Read more >>

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Who Will Stop the Massacre?

My name is Martha Deaver. I would like to tell you about some of the abuses that occurred in 1999 to my mother, mother-in-law, and other residents in a Beverly Nursing Home, Riverview Manor, in Morrilton, AR.

In March of 2000 I had my mother and mother-in-law moved to St. Andrew's Place, a one-owner nursing facility located in Conway, Arkansas. This was an attempt to find better care for my loved ones. The Arkansas State Office of Long Term Care has investigated all of the abuses that I am going to tell you about. The background evidence, which are hundreds of documents, were obtained through the Freedom of Information (FOI) department, in order to prove this story. Read more >>

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Resuming an Active Life

The Consumer Voice received the e-mail below from the friend and caregiver of E., a former nursing home resident.

E. became disabled in middle age and thought he would have to live in a nursing home for the rest of his life. At a Consumer Voice Annual Meeting several years ago, he heard a speaker say he had a right to live in a less restrictive setting, and with the help of G., he moved into an apartment and resumed an active life in the big city he loves.

Thank you for inquiring about E. He is fine. He even got married and I was his best man; at my age!

If I had not taken him out of the nursing home, he would probably be dead today. They used to give me such a hard time just taking him to see a doctor in the hospital. Once he was out, it became so easy to just make appointments and make sure he was ok.

He has been using his electric chair all the time. We have had so many fights about that issue that I gave up. I decided it is his life and not mine. He is a good soul and I love him a lot. 

- G.

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Bed Rails

My mother's death certificate states, "Deceased rolled out of bed compressing neck on portable railing." Her name was Clara. By 81 years of age, she had dementia, she could not move her left arm very well, and she lacked the ability to speak much or to call out. She died of asphyxia in March 2007. Read more >>

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Daddy suffered in silence — Are you next? - A true story by B. Lou Guckian

I had just turned 50 the year Daddy turned 82.

From its place on the nightstand, my cell phone rang at 2 a.m. I knew who was calling before I answered. It came from the nursing home and made the scared six-year-old in me shudder.

"Hi, Daddy. Are you OK?" This time, he told me he had been lying for an hour in cold sheets wet with urine. He told how he had repeatedly pressed the red button clipped to his bed sheet to alert the nurses' station but no one had come to help him use the bedside urinal.

Full of zip and lighthearted mischief before he got cancer, Daddy still suffered from incontinence caused by chemotherapy and radiation that had ended two months earlier. Thin as a skeleton and helpless as a newborn, he could barely raise his head off the pillow or punch numbers into the telephone—which he had quickly learned to cling to and sleep with.

I swallowed hard pushing down the sick swell in my throat and then asked him to hang up so I could call for help. I promised to phone him right back and did. Then I lingered on the line until someone arrived to help him. In a few minutes Daddy said, "They're here now. Thank ya, Sugah. G'night." Read more >>

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Elder Neglect

In August, my family made the difficult decision to place my grandmother in an assisted living facility. The primary reason - she had begun to fall and our biggest fear was that we would find her on her floor injured (or worse) without someone to help her in a timely manner. After reviewing our options locally, we chose [name] assisted living.

We met with the staff and reviewed and signed her care plan/contract. We specifically requested night time checks. This was a standard practice in their information packet. The night shift was to check in on her every two hours. Read more >>

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A Helpless Person's Plea for Empathy - A Poem

I lie here all alone totally helpless to be on my own, even too weak to think or converse ever aware of even the worse. Read more >>

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Fragrance of Love - A Poem

When you are ready to come to work, do you ever stop to reflect? What kind of fragrance will you wear today? Read more >>

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A View From the Inside: Residents Talk About Life in a Nursing Home the Government Accused of “Compromised Care”

In November 2008, the U.S. Justice Department announced that it had reached a $2 million settlement with Grant Park Care Center in Washington, DC, after a “comprehensive investigation confirmed that Centennial [HealthCare Corporation] routinely reduced staffing levels of certified nurse aides, licensed practical nurses, and registered nurses at Grant Park Care Center which resulted in compromised care being provided to its residents. The investigation also revealed that services to certain residents at Grant Park Care Center were either not rendered or were of a quality that failed to meet professionally recognized standards of health care. Specifically, numerous residents at Grant Park Care Center suffered from dehydration, malnutrition and increased infections. Residents were left alone for extended periods of time without cleaning or bathing, and often contracted preventable pressure sores. The United States and the District of Columbia also alleged that the staff at Grant Park Care Center failed to develop and follow resident care plans to meet the individual needs of each resident.” Read more >>

Disclaimer: The stories provided have been provided to the Consumer Voice; the posting of these contributions is not to be construed as an endorsement by the Consumer Voice of the content of any of these materials, nor does the Consumer Voice condone or take any responsibility for the content and/or the accuracy of the information.

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