Click on a state to see all citizen advocacy groups in the state.
Groups of concerned citizens who advocate for quality long-term care, services and supports and quality of life for residents and consumers in their locality, state or region sometimes self-identify as "citizen advocacy groups" (CAGs). These groups can be structured organizations with budgets, staff and offices or can be a small group of individuals who meet around the kitchen table to share information and strategize about how they can work to improve the long-term care, services and supports in their community.
Members of these groups are often people who have or had loved ones in a long-term care setting and are concerned about individuals receiving long-term services and supports. Despite their diversity, CAGs share a commitment to improving the quality of care, services and supports and quality of life for residents and consumers who are in need of long-term assistance. They may be able to inform you about resources in your state, quality in particular facilities or settings and the current status of long-term care, services and supports in your state.
Citizen Advocacy Groups
Alabama
Dixie Kuykendall
Alabama Advocates for Quality Care
6275 Dorsett Woods Drive
Mt. Olive, AL 35117
Arkansas
Martha Deaver, President
Arkansas Advocates for Nursing Home Residents
1631 Wills Drive
Conway, AR 72032
Work: (501) 450-9619
Website: http://www.aanhr.org
California
Patricia McGinnis, Executive Director
California Advocates for Nursing Home Reform
650 Harrison Street, 2nd Floor
San Francisco, CA 94107-1311
Work: (415) 974-5171
Website: http://www.canhr.org
Carole Herman, Founder/President
Foundation Aiding the Elderly
P.O. Box 254849
Sacramento, CA 95865-4849
Work: (916) 481-8558
Website: http://www.4fate.org
Colorado
Linda Holloway, Co-Founder
Bessie's Hope
P. O. Box 12675
Denver, CO 80210
Work: (303) 830-9037
Website: http://www.bessieshope.org
Delaware
Patricia C. Engelhardt
New Castle County
1859 Graves Road
Hockessin, DE 19707-9720
Work: (302) 239-5290
District of Columbia
Kate Ricks, Chairperson
Voices for Quality Care (LTC)
P.O. Box 2251
Leonardtown, MD 20650
Work: (888) 600-2375
Website: http://www.voicesforqualitycare.org
Georgia
Melanie McNeil, Executive Director
Georgia Council on Aging
2 Peachtree Street, NW
Suite 32-270
Atlanta, GA 30303
Work: (404) 657-5348
Website: http://www.gcoa.org
Flordia
ACTION
Anna Spinella, Chair
4714 W. Euclid Ave.
Tampa, FL 33629
Work: (813) 837-1714
Kate Ricks, Chairperson
Voices for Quality Care (LTC)
P.O. Box 2251
Leonardtown, MD 20650
Work: (888) 600-2375
Website: http://www.voicesforqualitycare.org
Illinois
Violette King, President
Nursing Home Monitors
6111 Vollmer Lane
Godfrey, IL 62035
Work: (618) 466-3410
Website: http://www.nursinghomemonitors.org
Wendy Meltzer, Executive Director
Illinois Citizens For Better Care
100 West Monroe Street
Suite 1800
Chicago, IL 60603
Work: (312) 663-5120
Website: http://www.illinoiscares.org
Indiana
Nancy Griffin, Board President, Phone: (317) 748-6700
John Cardwell, Executive Director, Phone : (317) 441-3812
United Senior Action
324 W. Morris Street, Suite 114
Indianapolis, IN 46225-1491
Work: (317) 687-3659
Website: http://www.usaindiana.org
Kansas
Mitzi McFatrich, Executive Director
Kansas Advocates for Better Care
913 Tennessee Street, #2
Lawrence, KS 66044
Work: (800) 525-1782
Website: http://www.kabc.org
Kentucky
Nancy W. Trentham, Secretary
Kentucky Initiative for Quality NH Standards
12702 East Cove Road
Anchorage, KY 40223
Work: (502) 649-7919
Bernie Vonderheide, President and Founder
Kentuckians for Nursing Home Reform
1530 Nicholasville Road
Lexington, KY 40503
Work: (859) 312-5617
Website: http://www.kynursinghomereform.org
Maine
Kate Ricks, Chairperson
Voices for Quality Care (LTC)
P.O. Box 2251
Leonardtown, MD 20650
Work: (888) 600-2375
Website: http://www.voicesforqualitycare.org
Maryland
Kate Ricks, Chairperson
Voices for Quality Care (LTC)
P.O. Box 2251
Leonardtown, MD 20650
Work: (888) 600-2375
Website: http://www.voicesforqualitycare.org
Beth Wiseman, President
Baltimore County Assn. of Senior Citizen Orgs.
611 Central Avenue
Baltimore, MD 21204
Work: (410) 484-6866
Website: http://www.spenceweb.org/BCASCO/
Massachusetts
Arlene Germain, President
MA Advocates for Nursing Home Reform
P.O. Box 560224
Medford, MA 02156
Work: (800) 988-4450
Website: http://www.manhr.org
Darlene Perkins, Community Organizer
Cape United Elders of Comm. Action Committee
Cape United Elders
115 Enterprise Road
Hyannis, MA 02601
Work: (508) 771-1727
Website: http://www.cacci.cc
Michigan
Laura J. Champagne, Executive Director
Citizens For Better Care
4750 Woodward Avenue, Suite 410
Detroit, MI 48201-1308
Work: (313) 832-6387
Website: http://cbcmi.org
Carole Newburry, Secretary
Michigan Campaign for Quality Care
4014 Old Field Trail
Kalamazoo, MI 49008
Work: (269) 353-6445
Website: http://www.campaignforqualitycare.org
Minnesota
Janet Golden, Executive Director
ElderCare Rights Alliance
2626 East 82nd Street, Suite 230
Bloomington, MN 55425
Work: (952) 854-7304
Missouri
Amy Coffman
Missouri Coalition for Quality Care
P.O. Box 7165
Jefferson City, MO 65102
Work: (888) 262-5644
Nebraska
Bill Seidler, President
Nebraska Advocates for Nursing Home Residents
10050 Regency Circle, Suite 525
Omaha, NE 68114
Work: (402) 397-3801
New York
Geoff Lieberman, Executive Director
Coalition of Institutionalized Aged & Disable
425 East 25th Street
New York, NY 10010
Work: (212) 481-7572
Website: http://www.ciadny.org
Richard Mollot, Executive Director
Long Term Care Community Coalition
242 West 30th Street, Suite 306
New York, NY 10001
Work: (212) 385-0355
Website: http://www.ltccc.org
North Carolina
Barb Langston, Administrative Coordinator
Friends of Residents in Long Term Care
883-C Washington Street
Raleigh, North Carolina 27605
Work: (919) 782-1530
Fax: (919) 782-1558
Website: www.FORLTC.org
Ohio
Judy Peck
Justina's Legacy: Communities for Better Nursing Homes
P.O. Box 95
Clifton, OH 45316
Work: (937) 265-5372
Oklahoma
Wes Bledsoe, President
A Perfect Cause
1501 North Broadway, Building A
Oklahoma City, OK 73103
Work: (405) 308-3858
Fax: (405) 308-3858
Website: http://www.aperfectcause.org
Pennsylvania
Diane Menio, Executive Director
CARIE
100 South Broad Street
1500 Land Title Building
Philadelphia, PA 19110-1088
Work: (267) 546-3434
Website: http://www.carie.org
South Dakota
Denise Korb, Chair
South Dakota Advocates for NH Reform
P.O. Box 6900
Rapid City, SD 57709
Tennessee
John Bender
East Tennessee Coalition on Advocacy, Inc.
9111 Cross Park Drive, Suite D100
Knoxville, TN 37923-4517
Work: (865) 691-2551
Texas
Beth Ferris
Texas Advocates for Nursing Home Residents
500 East Anderson Lane, #234W
Austin, TX 78752
Work: (512) 719-4757
Website: http://www.tanhr.org
Gay Nell Harper
Texas Advocates for Nursing Home Residents
Coastal Bend Unit
1015 Wavecrest Drive
Houston, TX 77062
Work: (281) 488-5291
Website: http://www.tanhr.org
Nancy McCabe, President
Nursing Home Victims Coalition, Inc.
5010 North Fresco Drive
Austin, TX 78731
Work: (512) 453-1770
Lou O'Reilly, Founder
Texas Advocates for Nursing Home Residents
634 Green Cove Lane
Dallas, TX 75232
Work: (214) 371-2942
Website: http://www.tanhr.org
Sam Perlin, Member
Beechnut Manor Family Council
4545 Cook Road, #303
Houston, TX 77072-1125
Virginia
Judith Stevens, Director
Citizens' Committee to Protect the Elderly
P.O. Box 10100
Virginia Beach, VA 23450
Work: (757) 518-8500
Anne Scott See, President
Friends & Relatives of NH Residents
P.O. Box 551
Harrisonburg, VA 22803
Work: (540) 433-1830
Joani Latimer
Virginia Friends & Relatives of NH Residents
1426 Claremount Avenue
Richmond, VA 23227
Work: (804) 644-2804
Kate Ricks, Chairperson
Voices for Quality Care (LTC)
P.O. Box 2251
Leonardtown, MD 20650
Work: (888) 600-2375
Website: http://www.voicesforqualitycare.org
Washington
Dwain Daniels, President
CareWatchers
1555 Union Avenue, NE #16
Renton, WA 98059
Work: (206) 418-6989
Website: http://www.carewatchers.org
Erika Campbell, Executive Director
Resident Councils of Washington
220 E. Canyon View Road
Belfair, WA 98528
Work: (360) 275-8000
Website: http://www.residentcouncilstore.org
Last Updated 09/11/2011
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